KidneyTalk - An Online Radio Show By Renal Support Network
Source: http://www.rsnhope.org Description: KidneyTalk is an informative and entertaining online, half-hour radio talk show with host Lori Hartwell. Healthcare professionals and people living successfully with kidney disease share personal experiences in inspirational, thought-provoking interviews.
9/10/2020 - Bacteria VS. Virus Do you know the difference between a bacterial infection and a virus? Are you aware of the different symptoms of each one? And do you know when an illness is contagious? These are important distinctions that determine the precautions anyone should take to avoid contracting an illness or passing it along to others. Listen in as Michael Kraus, MD, Associate Chief Medical Officer at Fresenius Kidney Care and Lori Hartwell discuss the good bacteria, the bad bacteria, and the ugly virus.
8/24/2020 - Assessing Your Kidney Transplant Health Assessing your kidney transplant health and making sure you keep that organ as long as possible is essential. Transplant Nephrologist Dr. Philippe Gauthier and Lori Hartwell discuss the evaluation of how doctors determine kidney rejection. Innovations in monitoring are now available that can help doctors prevent rejection so you can maintain the gift of life.
8/12/2020 - Innovations in Kidney Care John Butler, President and CEO of Akebia, has been involved in the field of kidney health since 1991, and has seen many innovations. He is also the elected Chair of Kidney Care Partners, the largest kidney care coalition in the nation comprised of patient advocates, dialysis professionals, care providers, researchers, and manufacturers. John feels a personal connection to the kidney community. His purpose-driven mission is to better the lives of all people impacted by kidney disease. Listen in to learn about the current innovations in kidney disease treatments and what is on the horizon.
7/14/2020 - Valen Keefer: A Double-Transplant Survivor Story At age 10, Valen Keefer was diagnosed with polycystic kidney disease. By age 18, after spending a year in the hospital, she needed a kidney transplant. As if that was not enough, in 2016, Valens chronic sepsis led to her need for a liver transplant. Now in her 30s, Valen shares her inspiring story of survival navigating many health hurdles.
7/6/2020 - Tips to Help the Search for a Living Kidney Donor How do you go about finding a living kidney donor? Karol Franks began her journey with advocating for a kidney for her daughter in the late 1990s. She provides insight in to what is involved in searching for a kidney and ways to get started. She shares with Lori what is involved and the steps needed to start the process of kidney donation.
5/8/2020 - Covid-19 and Organ Donation How has Covid-19 affected organ procurement organizations (OPOs)? Are kidney transplantations and donations still taking place? Today, Lori talks with Kristine Neal, Director of Communications for South Carolinas OPO, We Are Sharing Hope SC. Listen in to this show to learn how the pandemic has altered the experiences of transplant recipients and prospective donors, and learn what OPOs are doing to help ensure the Gift of Life continues.
4/29/2020 - Kidney Transplant Care and Well Being During Covid-19 It is a given that anyone with a weakened immune system is more vulnerable to the Covid-19 virus than the general public. If you are waiting for a kidney transplant, or have had one, you will want to listen to this informative podcast. Lori, and transplant nephrologist Dr. Rafael Villicana, Medical Director of the Loma Linda Transplant Center, have a candid conversation on what you can expect and do to protect yourself during the Covid-19 pandemic.
4/6/2020 - Maintaining Emotional Balance in an Unbalancing Time In this time of Covid-19, healthcare professionals are very stressed, and both staff and people who require dialysis care need to be supportive of one another. To increase the supply of comfort and empathy, the executive committee of the Coalition for Supportive Care of Kidney Patients is working to get the right words to dialysis clinic personnel. Listen in to this show to learn coping mechanisms at this critical juncture to help alleviate anxiety.
4/6/2020 - Covid-19 and Staying out of the Hospital Now more than ever it is important to avoid a hospital stay. Some hospitals are already at or near capacity and many are concerned about shortages ahead of expected coronavirus cases. You can help yourself and your local healthcare system by making sure that you remain as healthy as possible. Learn about the most common causes of hospitalization in people requiring dialysis and what to do to stay safe.
3/26/2020 - Kidney Diet: The Times are Changing Jennifer Parker, RDN, CSR, LDN, is the Lead Dietitian at Fresenius Kidney Care. Today we learn from her about the new renal diet guidelines that are soon to be released. Jennifer and Lori discuss how you can stick to your recommended diet and still enjoy meals. Listen in to this show to find out what is back on the "good" list, and more.
3/23/2020 - Living the Dream: Putting Faith into Action Tim Atkins grew up with kidney disease. His 41 years on dialysis has not stopped Tim from visualizing his dreams and passionately pursuing them. His adventurous lifestyle, while on home dialysis, has taken him to many places. While enjoying a career in broadcast radio, Tim lived in the Virgin Islands and traveled across the U.S. in an RV with his dialysis machine in tow. Listen in to hear why home hemodialysis works so well for Tim, as he shares his tips to success for living the dream.
2/20/2020 - Blurred Lines: Keeping Safe Boundaries at a Dialysis Clinic People who need dialysis often spend so much time at a clinic that they, and the staff, view each other as friends instead of maintaining a professional relationship. Eileen Rhodes, Patient Services Director at the ESRD Network 18, shares why this can lead to crossing important boundaries. Maintaining a high level of care requires everyone to stay on the same page and understand the boundaries of a patient/staff relationship. Lori and Eileen discuss this topic in detail and offer tips for everyone in a clinical setting to remember. Tune in to learn how to advocate for yourself, as a patient in these situations and, if necessary, start resolving these issues.
2/12/2020 - A Date with Destiny Lisa Summers met Dan, on an online dating site and soon discovered she was in fact a perfect match for him. Dan learned that he had kidney disease and would need to start dialysis treatments. Lisa educated herself about kidney disease, and would go on to become health advocate for Dan, and so much more. Listen in to hear about her journey through the process, including giving the gift of life.
2/6/2020 - What is Sodium? Robin Russell, MS, RD, LD, is the Fresenius Regional Lead Dietitian at North Texas Region, Great Plains Group. Today she talks with Lori about all-things sodium. People who are on dialysis know the struggles of controlling thirst and managing fluid. Sodium intake has a lot to do with successfully keeping thirst at bay. Robin shares with Lori the difference between table salt, monosodium glutamate (MSG) and all the many other ingredients you will find in food. Listen in to learn all of this, plus some sodium free alternatives.
12/17/2019 - Choosing and Preparing Kidney-Friendly Holiday Foods Holidays can be challenging for those with kidney disease. Watching portion sizes and indulging in tempting treats in moderation is key. But so is keeping a focus on the enjoyable foods that are within the renal diet instead of thinking about the foods to be avoided. Lori and Lubna will discuss some delicious main course choices and sides that satisfy special dietary needs such as stuffing a turkey with apples and serving brie as a lower phosphorus cheese option. Listen in to learn all this and more and enjoy those holiday parties and meals!
12/6/2019 - Keep on Believing Americas Got Talent superstar Angelica Hale says, "Never give up and keep on dreaming. Keep on believing in yourself. No matter what you are going through, you can still achieve your dreams and reach your goals." Angelica faced several challenges as a toddler and had a kidney transplant at the age of four. She went on to win runner up in the 12th season of Americas Got Talent five years later. Like Lori Hartwell, Angelica overcame so much at a young age and yet came out on top. Listen in to hear her incredible story, and learn how she remembers to take her transplant meds and copes with life after a transplant. And dont miss her exciting plans for the future!
11/5/2019 - Understanding and Preventing Transplant Rejection Anyone who receives a kidney transplant has an important role to play to prevent their body from rejecting the new organ. What can you do to increase the life expectancy of your new kidney? Dr. Stanley C. Jordan is the Director of Nephrology and Transplant Immunology at Cedars-Sinai Medical Center and a pioneering kidney transplant researcher. Lori has known him since her childhood. From the beginning of his career, he was fascinated by immunology research and wanted to understand how it could be applied to problems with transplant rejection. In this episode of KidneyTalk, Dr. Jordan delves deeply into the role of antibodies—how they affect who is able to receive a transplant and how long that kidney can remain healthy.
Dr. Jordan shares with Lori what transplant recipients must do to keep their new kidney healthy. Listen in to hear about new immunology therapy and the treatment advances that can prevent transplant rejection and help people keep their gift of life.
10/24/2019 - Hope for Treating Rare Forms of Kidney Disease As someone who has had kidney disease since age 2 back in 1968, Lori Hartwell has witnessed many exciting medical breakthroughs throughout her life. Today she speaks with Geoffrey Block, MD, vice president, nephrology, at Reata Pharmaceuticals, about some of those breakthroughs. Dr. Block is part of a team researching a new, regenerative medicine to improve kidney function in those with rare forms of kidney disease such as Alport Syndrome, autosomal dominant polycystic kidney disease (ADPKD), and focal segmental glomerulosclerosis (FSGS). Listen in to this show to hear the encouraging results of the team’s published clinical research.
10/10/2019 - Cleared for a Kidney Transplant Dr. Rafael Villicana, medical director of kidney transplants at Loma Linda Medical Center, and Lori Hartwell, are both well-acquainted with the kidney transplant process. Listen in to this show to learn about how to become listed to receive a kidney transplant. During the interview, Lori and Dr. Villicana will talk about the requirements and timelines for both living and deceased donor transplants and walk you through the process of getting the tests they require. You’ll also hear about scenarios that may prevent you from becoming listed.
9/10/2019 - Celebrating Nephrology Nurses Nephrology nursing is a unique specialty. Because kidney failure requires a great deal of maintenance, nephrology nurses really get to know their patients and often have long-term relationships with them. They learn each patients specific needs and unique indicators for when they do not feel well or are out of sorts, or when they are doing well and should keep up the good work.
Tamara Kear, PhD, RN, CNS, CNN has over 30 years of experience as a nephrology nurse and has held a variety of roles within this specialty. In 2020, she will become the Executive Director of the American Association of Nephrology Nurses to help lead the future. Today Lori and Tamara discuss the role of the nephrology nurse and why Lori Hartwell admires and appreciates all they do.
Nephrology Nurses week is Sept. 8 – 15, 2019. We would like to say thank you for choosing this career and for making a difference in so many lives.
8/29/2019 - How to Tell Your Story Everyone has a book in them, so how do you get it out? Adversity introduces you to yourself and everybody has a unique perspective. Especially when you have experienced a life contending with a chronic illness. Your distinctive point of wisdom can help someone else struggling to live a fulfilling life with the same illness. But where do you start? Henriette Ivanans and Lori Hartwell each have a successful book under their belts. Listen to these two accomplished authors for tips on how to tell your story and reach those who need to hear it.
8/21/2019 - Pets & Kidney Transplant Safety A beloved animal is your best friend. To hear a doctor say you have to give up your pet in order to get a kidney transplant is a nightmare. There are mixed messages in the healthcare community about having a pet and receiving a kidney transplant. Dr. Rafael Villicana, the Kidney Transplant Medical Director of Loma Linda Medical Center and Lori Hartwell discuss the general precautions to take to keep your furry and feathered friends and prevent the risk of infection. Learn what you need to do and which animals need an extra level of care so transplant recipients can stay healthy.
8/14/2019 - Opt-In vs Opt-Out Organ Donation Practices Around the World What is the difference between an opt-in and an opt-out organ donation policy? Is one more successful than the other? Tom Mone, Chief Executive Officer of OneLegacy discusses with Lori what they learned in preparation of writing this article, "Success of Opt-In Organ Donation Policy in the United States" published in the Journal of the American Medical Association. Listen to this thought provoking conversation about the Gift of Life.
8/1/2019 - The Role of the Nephrology Social Worker Each dialysis clinic has a social worker onsite to help patients adjust and build their coping skills. Vernon Silva, LCSW, a Nephrology social worker for more than 20 years, shares how the role has evolved. The nephrology mental health professional now uses evidence-based results to help people through vocational rehabilitation, or even transition to different dialysis treatment options. Listen in to this show as Lori and Vernon discuss how the social worker in your life can assist you and help you reach your goals.